Collaborators
The hEDS*omics Program represents a collaborative effort of extraordinary breadth and depth, bringing together leading clinicians, innovative researchers, dedicated patient organizations, and cutting-edge technology partners across Québec and internationally. This multidisciplinary collaboration ensures our project remains scientifically rigorous, clinically grounded, and genuinely patient-centered—reflecting the voices and experiences of those living with hEDS and HSD.
By combining academic excellence, clinical expertise, technological innovation, and patient advocacy, we've created a unique ecosystem that accelerates discovery while maintaining the highest ethical standards and commitment to real-world impact.
Clinical and Academic Partners
Technology and Community Partners
Technology and Data Science
Patient and Community
" Our mission is to transform the understanding and management of hEDS and HSD by integrating molecular data with deep clinical, lifestyle, and environmental information."
hEDS*Omics Research Program
External collaborators
Department of Internal Medicine
Lausanne University Hospital (CHUV), Switzerland
Geneticist & Genetic Counselor, President & CEO
Regroupement Québécois des Maladies Orphelines (RQMO)
Executive Director
Regroupement Québécois des Maladies Orphelines (RQMO)